Sunday, August 2, 2009

Nothing But Trouble

This past 7 or 8 days has been an exercise in patience for the most part. I have run a fever with every shot and generally felt lousy. A week ago last Thursday I had to deal with a problem at the hospital in getting the person who was helping me with my disability application completed. After having left several messages over the past few weeks and not having a single call returned I had to report this to the hospital administration to try to get help. All I needed was the access code for the online application we had started so I could finish it. They assured me they would look into it, and the next day they called back and said they had spoken with the individual I was dealing with and he would get back with me within the next couple of days. If I didn't hear anything by Monday to call them back. I waited until Tueday and then followed up, as I still hadn't heard anything. One of the administrators called his supervisor as they were unable to reach him and it still took until Thursday at 5 pm to recieve a phone call from him. I did finally get the code though.

On Sunday I ran a fever for several hours with the shot and was up all night. In fact this one was longer than I usually remember and it didn't start to subside until 8 am. Monday I slept the biggest part of the day, and the evening was spent with back spasms.

Tuesday was the day I dealt with the hospital administrators, and I also made an appointment with my neurologist. It was supposed to be another shot day, but what happened next changed that. In the afternoon I was sitting in the bathroom trying to relax (no graphic details necessary) when I had an episode. I don't know if it was MS related, or stress related, but all of a sudden my head started swimming and it felt like I was sinking into a hole. I slid/slumped off of the toilet so I wouldn't hit my head and hurt myself. When I didn't immediately pass out I crawled into the hallway and rolled onto my back. Whatever was going on with my head continued for what seemed like an eterntiy, and profuse sweat was just rolling off of my face. After about 15 minutes the worst part subsided enough for me to put myself in bed and start making calls to my doctor's office and the MS clinic. A short while later the nuerologitsts office called and advised me not to take the shot until I had seen him for my appointment the following day.

As it turns out he did not believe it was related to the medications, but at the time I wasn't sure because there are some MS meds that DO cause episodes like the one I experienced and I wasn't sure about mine. There are also physiological causes related to MS that can cause this. He examined me, also looking at what remained of spot on my leg from the shot I took back on July 10, and told me I could resume the shots. It was a big relief because I really did not want to go without the meds. He also sent me to the lab for yet another blood draw, as there are several things that have to be monitored regularly. I am starting to feel like a good old-fashioned tomato pin cushion.

On Friday I had a counseling appointment. I have had an enormous amount of emotions the past 2 months and I HAD to get in for some help. This was just the first one, for an evaluation. The therapist seemed to be real good at his job, and at the end of the appointment it was decided I would go to a group that is dealing with anxiety and depression secondaary to an underlyng medical condition, which I thought was fantastic and appropriate. It certainly eased any negative feelings I had about the whole thing to be in this particular group.

Friday afternoon I got to see my Aunt Jenny and Uncle Mike, who were in town from Texas, and my Uncle Carl who was up from Colombus, although it was for a very short time. I sure wish I had felt better and could have visited longer, but I had some things to get done and was already wore out. Everyone went out to eat to celebrate several birthdays this month and I sure wish I could have been there.

I spent about an hour yesterday getting the last of my things out of the house I was renting and into my new home. Mom helped me clean the floors the night before. I didn't sleep the night before and it was a shot day, by 7 pm last evening I just couldn't go anymore and laid down. I got back up at 9 pm to go return my keys to the landlord and eat, then back to bed. I was exhausted and forgot to take the night medicine for the spasms, so it wasn't very long when I reawakened to do that. I then fell back asleep and slept until 4 am which is more hours than I usually get at one time. I sure needed it.

About My Blog

This is my personal blog. It details my own personal experiences with MS, as well as other ramblings about my life. I am NOT a medical professional and cannot offer advice or opinions of a medical nature. If you need medical atention, please contact a physician or, in emergencies, your nearest hospital emergency room. MS has many faces, and every single patient has his or her own unique experiences and challenges.

The links I provide are things I think may be of interest to those with MS or their friends and family for further research, and does not constitute an endorsement.