Monday, December 21, 2009

Update in MS Research, Genetics and Clinical Trials

The National Multiple Sclerosis Society offers free educational programs on a series of different topics through September 2010. Offered on the second Monday of designated months, each is about an hour long. On January 11, 2010 the keynote speaker, Dr. Patricia O'Looney, VP of Biomedical Research for the NMSS, will speak on Updates in MS Research, Genetics and Clinical Trials as part of this Midwest Teleconference Series. To register, call 1-800-344-4867. To see all upcoming topics click the title of this post.

Advance Directives Available from St. John's Center for Spiritual Care

From a flyer at Erskine Rehab: Advance Directives including Living Will, Appointment of Representative, Power of Attorney for Healthcare and more available from the Center for Spiritual Care. 765-646-8182.

Special offerings at St. John's

I am passing on this information to my friends in the area. I am not affiliated with St. John's, just sharing. Medical Nutrition Counseling is available from registered dieticians and is provided to individuals in various diet situations. Call 765-646-8197 for more information. How Do I Go On? grief support group meets the second and fourth Thursdays of each month from 10 a.m. to 12 noon at Lindberg Road Church of Christ, 2625 Lindberg Rd. Free. Call 765-646-8179 for more information. Better Breathers, a free program for individuals dealing with any lung condition. Information, education, and fellowship conducted on the third Thursday of ech month at 3 pm in the St. John's Pulmonary Rehabilitation. For more info call 765-646-8499. Please call about the offerings to confirm details..

Vitamin B12 Added to My Supplement Regimen

I have added B12 (sublingual dots) to my daily supplements. Many MS patients get B12 shots. I just started so I will let you know if I notice any difference. I heard they go well with donuts so I should do good. Just kidding, the donuts are just because :)

December Update on Heuga Center Goal

Well I just got off the phone with Can Do Multiple Sclerosis (formerly the Heuga Center for Multiple Sclerois). I will go in 2010 if they have a spot open for me. I have to complete the application for the program and submit it, which I am going to try to work on this week. I am hopeful they will grant me a scholarship for the program. I see that they have one scheduled for May 2010 in California. If there isn't anything else scheduled I would gladly take that one, but I will have to figure out how to get there. I will not fly on an airplane anymore unless I am fleeing for my life from some calamity- the last few times I have flown I have had excruciating head and ear pain to the point of involuntarily crying. A lot. To the point of embarassment. This was before I knew I had MS. I thought I was just a weenie. Turns out I wasn't. I would imagine I will look at Amtrak to get out west unless someone want to drive me that far.

Tuesday, December 8, 2009

Merry Christmas Everyone!

I have been busier than, well, a one-and-a-half-legged man. Sorry for no updates for such a long time. I wanted to wish everyone a very Merry Christmas! I hope your holiday season is joyous and blessed. I hope you can find time to work with church groups and other organizations that help the needy. Food pantries always need food. The Salvation Army always needs funds especially this time of the year. There are many more people out of work this year than we have seen quite some time, so the needs are great this year.

I will post soon about my diet progress and more.

About My Blog

This is my personal blog. It details my own personal experiences with MS, as well as other ramblings about my life. I am NOT a medical professional and cannot offer advice or opinions of a medical nature. If you need medical atention, please contact a physician or, in emergencies, your nearest hospital emergency room. MS has many faces, and every single patient has his or her own unique experiences and challenges.

The links I provide are things I think may be of interest to those with MS or their friends and family for further research, and does not constitute an endorsement.