At my last MS group meeting, another MS patient passed out some information on a new website with a game for MS patients to help with cognitive skills. I just went there and registered and spent a few minutes looking around. The registration asks some very basic demographic information such as age and date diagnosed and what stage you are in and zip code. Once that is done you can play the game. It does not ask for any personal information. I did poke around for just a minute and I see there are other areas with information on Assistive Technology resources for telephone and computers, for example. I will try to report back after I have explored a little, but wanted to pass this on to others. My understanding was this may be part of a registry project, but I haven't seen anything about that yet.
The flyer says "MS Technology Collaborative Cognitive Game". Here it is if you want to check it out.
http://www.myMSmyWAY.com
Commentary on life with MS (Multiple Sclerosis). Education and resources for friends and family of MS patients. Ramblings on Midwest living, gardening, food and anything else I decide to write about.
About My Blog
This is my personal blog. It details my own personal experiences with MS, as well as other ramblings about my life. I am NOT a medical professional and cannot offer advice or opinions of a medical nature. If you need medical atention, please contact a physician or, in emergencies, your nearest hospital emergency room. MS has many faces, and every single patient has his or her own unique experiences and challenges.
The links I provide are things I think may be of interest to those with MS or their friends and family for further research, and does not constitute an endorsement.