Organic Biscuit: Going to the MS Clinic Tuesday and More

Tuesday, August 18, 2009

Going to the MS Clinic Tuesday and More

I am going to the MS Clinic tomorrow (Tuesday) to talk to them about my needs not being met right now. Despite the amazing outpouring of support from several family members and friends on a daily basis, I am still overwhelmed and exhausted and they unable to keep up with what needs to be accomplished. I am hoping it is a productive meeting where I can get some additional help and support.

I also received an email from my state representative and they want to speak with me regarding some difficulties I have encountered receiving assistance with food stamps and Medicaid.

I still have a million things on my plate, many of which are long overdue and my energy level is zero, not to mention the pain, fevers, spasms etc. When I read the message boards from other patients talking about this disease being a "Monster" I know what they mean. I have no job, I have no assistance, I have no money, and I have less than zero energy.

I told my state representative that I would be advocating for those with MS ongoing. The challenges are many. My core body temperature continues to fluctuate around the clock, every day. It averages a 4 degree swing right now daily. Every day, slowly 4 degrees up, then 4 degrees down. It is like having the flu without the vomitng.

About My Blog

This is my personal blog. It details my own personal experiences with MS, as well as other ramblings about my life. I am NOT a medical professional and cannot offer advice or opinions of a medical nature. If you need medical atention, please contact a physician or, in emergencies, your nearest hospital emergency room. MS has many faces, and every single patient has his or her own unique experiences and challenges.

The links I provide are things I think may be of interest to those with MS or their friends and family for further research, and does not constitute an endorsement.

Walk MS 2011 Underway!

The WalkMS 2011 campaign is underway! I will be participating as a Walk Captain for the Anderson Area Taking Strides team at the WalkMS event for the East Central Indiana group. The Walk will be held on April 16, 2011 at Worthen Arena on the campus of Ball State University in Muncie.

We would love to have your support. Please join us for the walk! You may participate in several ways, including walking with us, raising funds, donating in any number of ways. The proceeds from the walk help support MS patients and their families in many ways, including local support groups, many programs through local and state chapters of the NMSS, and direct assistance programs for those in financial need.

MS can be financially devastating, and there are many patients and families in need. You may donate right now by clicking here. Thank you! Hope to see you there!