Haven't checked in for a couple of days. I had an appointment with my neurologist Friday. My right leg is still weak as a kitten. I am able to walk around on it but I have to use to cane or I wouldn't be getting far. He checked the strength in my arm and leg like he always does, and we talked about some of my concerns. I also checked in with my nurse at the MS clinic. They are still getting some of their programs together there, but she is going to see about getting me the physical therapy they talked about when I was in the hospital.
Anyway, the neurologist signed for me to get a handicap license plate so I can park closer when I am able to drive myself and he signed for me to get a cooling vest from one of the MS agencies. The vest is something I can wear outdoors in the heat so I can stay cooler. He wasn't sure about the concept, but some of the MS agencies advocate them and one nurse I talked to said a patient used one on a bike ride and reported that it was still cool after two or three hours. I don't know if I will be approved yet for it, but I would like to have one because I haven't been able to garden or tend to me plants the way I would like to. I can't stand the heat and it often causes other problem including problems with vision and dizziness.
I also talked to the company that is providing my Betaseron. They received my assistance paperwork and it looks like I have been approved, just waiting on the final word. They said I should hear from the mail-order pharmacy by Monday or Tuesday. I reminded them that I will be down to one final dose come Sunday when I take my shot and that one would be gone on Tuesday. She said they could overnight the medicine to me. I am so thankful to be approved for the assistance, as this medicine is VERY expensive.
Commentary on life with MS (Multiple Sclerosis). Education and resources for friends and family of MS patients. Ramblings on Midwest living, gardening, food and anything else I decide to write about.
About My Blog
This is my personal blog. It details my own personal experiences with MS, as well as other ramblings about my life. I am NOT a medical professional and cannot offer advice or opinions of a medical nature. If you need medical atention, please contact a physician or, in emergencies, your nearest hospital emergency room. MS has many faces, and every single patient has his or her own unique experiences and challenges.
The links I provide are things I think may be of interest to those with MS or their friends and family for further research, and does not constitute an endorsement.