Organic Biscuit: MS Activism: Stand Up and Be Counted!

Monday, September 27, 2010

MS Activism: Stand Up and Be Counted!

The national registry may be alive! We may be able to finally be counted! The email I just received from the National MS Society's activism team is asking the MS community to write their congress-person and urge the passage of H.R. 1362,the National Neurological Diseases Surveillance System Act, which will take a count of those with MS and other neurological diseases.

To my mind this would be a great first-step, long overdue, and it may shed some real light on MS and those afflicted. I believe when the numbers start coming in there will be a renewed sense of urgency to helping the MS community.

I just emailed my congressman (Mike Pence,R.,Indiana). It was easy to do, right from the National MS Society's website. I urge everyone to take a few minutes to do this, as this bill is currently being worked this session!

Click the title of this posting above.

About My Blog

This is my personal blog. It details my own personal experiences with MS, as well as other ramblings about my life. I am NOT a medical professional and cannot offer advice or opinions of a medical nature. If you need medical atention, please contact a physician or, in emergencies, your nearest hospital emergency room. MS has many faces, and every single patient has his or her own unique experiences and challenges.

The links I provide are things I think may be of interest to those with MS or their friends and family for further research, and does not constitute an endorsement.

Walk MS 2011 Underway!

The WalkMS 2011 campaign is underway! I will be participating as a Walk Captain for the Anderson Area Taking Strides team at the WalkMS event for the East Central Indiana group. The Walk will be held on April 16, 2011 at Worthen Arena on the campus of Ball State University in Muncie.

We would love to have your support. Please join us for the walk! You may participate in several ways, including walking with us, raising funds, donating in any number of ways. The proceeds from the walk help support MS patients and their families in many ways, including local support groups, many programs through local and state chapters of the NMSS, and direct assistance programs for those in financial need.

MS can be financially devastating, and there are many patients and families in need. You may donate right now by clicking here. Thank you! Hope to see you there!