Thursday, August 12, 2010

Learning to Live Again: One Year after MS

June 6, 2010 marked one year since I was diagnosed, and July 1, 2010 was the one-year anniversary of my being on Betaseron injections. What a whirlwind year it was, not only for myself, but for my family and friends as well.

If I was going to write a book about it (and I just might), it would be titled "How to Survive MS Without Losing Your Mind". That one would be for those living with MS. The one I would write for friends and family of MS'ers would be titled "You Have No F-ing Clue What You Are Talking About, So Shut Your Piehole". I say that in jest, I would not do such a thing. (I might think it, but never do it). I only say that because of the incredibly insensitive, uninformed just plain ignorant things people have said to me over the past year, most of which many MS'ers can totally relate to and which the blissfully unaware should thank God they are so clueless.

I love all of my family and friends, so don't worry- it's not YOU I'm referring to, it's those other people. :) Really, I'm truly just kidding. I do still have my sense of humor.

I have had to literally re-train my brain to do things (like think and remember). I have had to go through physical therapy. I am going through occupational therapy and in the process of starting vocational rehabilitation. I have had to fight with a completely broken medical-insdustrial complex to get my meds ($30,000 + annually just for the injections), I have had to endure multiple episodes related to the MS. I may not exactly be winning (though I just might be), but I dang sure ain't losing!

This year has been about learning to live again, so I present the Foo Fighters, Times Like These.

About My Blog

This is my personal blog. It details my own personal experiences with MS, as well as other ramblings about my life. I am NOT a medical professional and cannot offer advice or opinions of a medical nature. If you need medical atention, please contact a physician or, in emergencies, your nearest hospital emergency room. MS has many faces, and every single patient has his or her own unique experiences and challenges.

The links I provide are things I think may be of interest to those with MS or their friends and family for further research, and does not constitute an endorsement.